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Thursday, July 30, 2009


Isaac is doing very well on the hi-flo nasal canula and they have lowered his pressure to 3%.
He seems to be having apneas when he falls asleep on his back and they are watching that
now but he has done it all along. He is weaning off his steroids and Monday we are going to
try bottle feeds again I am praying after all the problems we have had that he takes right to
it and can juggle the suck, swallow, breath routine. He will have to take a full bottle for 4
feeds of the day before he can come home and it takes alot of energy to do this so pray that
he can handle all this extra on top of maintaining his breathing. I also ask that you pray for
Nate and I as we are dealing with the bills and home life. Jacob, Isabelle,and Josiah are
getting to an irritated state and are starting to miss us and act out because of it. We are all
exhausted and just need a break and that won't happen till Isaac is home where he belongs.[caption id="attachment_155" align="alignleft" width="300" caption="sleeping in the big boy crib"]sleeping in the big boy crib[/caption]

Sunday, July 26, 2009

Back on track

Well after almost two weeks we are back on track with the breathing. Friday morning they gave
him a tiny dose of steroids and by his 11am touch time he was already doing so much better, they
did his regular breathing treatment and his O2 dropped to the 20's with everyone scrambling to
make sure everything was connected right and working properly I asked if anyone had suctioned
his mouth after the treatment and that was the problem more boogies came out of his nose and
mouth than you have ever seen in any child they even got some out of his bronchial tubes it was
so thick and gross the Dr couldn't handle it. We got him wrapped back up and started his feeding
and even on his back (which is normally the worst possition for him) he was having O2 constantly
100 we were so shocked God is truly working in Mr. Big and we should be able to do a bottle again
this week after his eye exam of course we won't make that mistake again. Isaac is between 4.5 and
4.10 in weight and we will get an accurate weight tomorrow evening and a new length. He is on a
nasal canula that is helping in just the tiniest little bit giving him some oxygen and he could be off that
in a week if all goes well.

Monday, July 20, 2009

Take a deap breath

Well I am not so happy about what the Dr. had to say today and will patiently wait till Wednesday
when the more flexible Dr is on duty I was told Isaac will be on the si-pap the rest of the week at
least because he is having to have lasiks (a diuretic) that has a side effect of making the body retain
co2 thus totally defeating the purpose of the respiratory machine that makes him puffy and the
reason for the diuretics such a vicious cycle So we will see what Wednesday brings and maybe we
can get back on track with the bottle feedings and then our little Mr. Big can come home. It seems
like all the other babies are doing so much better even the one that has had 6 surgeries very
discouraging so please keep him in your prayers and that the Dr.s do the right thing and he comes
home in Gods perfect timing.

Wednesday, July 15, 2009

Yay! first bottle feed

Yesterday we did Isaac's first bottle feed and he get 5 ml down before the nurse called it quits
because she didn't want to totally wear him out since he had so much going on with blood gas,
eye exam, physical therapy exam, and then somehow the oxygen tube came unconnected and
he was doing it all on his own just not as well as they wanted. it took us about 10 min to figure
out why. So we will see what the end of the week brings us as far as progress.
[caption id="attachment_159" align="alignleft" width="300" caption="Yummy milk"]Yummy milk[/caption][caption id="attachment_158" align="aligncenter" width="225" caption=" nurse Mary giving my 1st bottle"] nurse Mary giving my 1st bottle[/caption][caption id="attachment_157" align="alignright" width="225" caption="first bottle feed"]first bottle feed[/caption]

Monday, July 13, 2009

One step closer

Wow what a weekend Isaac was moved onto a hi-flow nasal canula so he is breathing on
his own now. He is doing very good and is now getting 36ml milk and we are going to try
bottle feeding tomorrow. He is now 4lb1oz and if all goes well as soon as he can bottle feed
without choking and remembers to breath he will be able to come home. So we are scrambling
to get the projects finished and the house sanitized so it is all ready for him when they say
its time. This has been such a trying time and we really appreciate all the help and support
and prayers.

Wednesday, July 8, 2009

quick update

Isaac is getting 34ml milk now and by this weekend he will upgrade to a high flow nasal
something its the little tube the older people have when they have to have oxygen.
He is 3lb 12oz and apx 20" long 39 1/2 cm to be precise. He is growing and doing great so
please keep praying.

Sunday, July 5, 2009

Growing Up!

big boy clothes Well this has been another great week he has tolerated feedings and they have gone up to
32 ml of milk every 3 hours and they removed the breathing tube yesterday morning and the
blood gas this morning looked really good. They have started putting preemie clothes on him
and he is so adorable even though they don't quite fit. We are getting so close to him being
able to come home but we still have alot of milestones to overcome. At the moment he is on
a cpap/sipap machine that will help keep his lungs from collapsing between breaths and I don't
know what time frame we are looking at for that one to go away. He will have to drink a whole
bottle in 30 minutes in order to come home and be able to regulate his own body temperature.
He does a pretty good job keeping himself warm so I don't think that will be a problem and he
already sucked the tube constantly at feedings and takes a pacifier so as long as he can swallow
and not choke himself and remember to breath I think he will be ok. so we are still looking at the
end of July or the middle of august depending on how quickly he catches on. Thank you so much
for all your prayers the rest of the NICU could use some also there were 8 babies when Isaac was
born and they are close to 25 or 30 now there are at least 3 sets of twins and one set of triplets
now that take up alot of the Dr's time I have talked with one of the parents of a set of twins that
live in Sherman and those boys are not doing very good at all in fact they have been asked to just
let the babies die ans stop fighting it is very sad and I ask you all to pray for them they do believe
in God but are not Christians.